A patient perspective on information provision during the care path of Lentigo Maligna
Published November 2, 2022
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Infrastructure & Governance | Patient Family & Community Engagement | Policy & Measurement
Hard-Wiring Engagement: Embedding Patient and Family Voice through Policy
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11:00 AM PT / 2:00 PM ET / 7:00 PM London – This session brings the webinar series together by focusing on how organizations can hard-wire patient, family, and care partner engagement through organizational policy. Participants will explore policy levers, language, and governance strategies that support long-term sustainment of Domain #5 elements and ensure engagement
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Patient Family & Community Engagement
Communication Solution: Stop (just) Training Doctors, Start Training Patients
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Gabby Ceccolini, MS Healthcare Communication Specialist The Problem with Patient-Centered Care For decades, our healthcare system has poured time, money, and innovation into training doctors to communicate better; however, what if we are overlooking the other half of the equation? The term “patient-centered” began appearing in medical literature in the late 1980s. It wasn’t until
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Patient Family & Community Engagement
Beyond a Seat at the Table: Building the Infrastructure for True Patient and Family Partnership
Published February 25, 2026

Darcel Jackson, Manager, Patient and Family Centered Care Paige Warner, PFA Engagement Specialist Children’s National Hospital For years, patient and family engagement in healthcare has been framed as offering “a seat at the table.” While well-intended, that language often limits partnership to presence rather than influence. Our experience taught us that families don’t need a
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