Technology about me without me: An examination of the relationship between patient-facing technology and patient experience
Published November 2, 2022
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Innovation & Technology | Patient Family & Community Engagement
De l’écoute à l’action: comment la voix du patient façonne les soins?
Published September 17, 2026
Webinaire gratuit en français – Comment la voix du patient façonne-t-elle vraiment la conception des soins ? Cette table ronde réunit des professionnels de santé français qui réinventent l’écoute patient pour améliorer le parcours de soins, au-delà des enquêtes classiques : patients partenaires, ateliers de co-construction, intelligence artificielle et outils numériques d’écoute. À travers des exemples
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Patient Family & Community Engagement
Teen Volunteers are Shaping the Human Experience in Healthcare
Published July 1, 2026
This blog is part of a series on Teen/Youth Volunteer Programs in healthcare. See links at the bottom for other resources. By Jill Hilliard, Volunteer Services Coordinator Family Partners and Support Group Le Bonheur Children’s Hospital Why Teen Voices Matter “I spent my 16th birthday in a hospital room. I remember scrolling through photos of my
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Patient Family & Community Engagement
Building Trust in the Absence of Certainty: Community as Trust in Action
Published August 6, 2026
This personal narrative explores how trust is experienced and sustained in the context of serious illness, where uncertainty is persistent and control is limited. Drawing on the lived experience of caregiving for a child with an undiagnosed congenital diaphragmatic hernia (CDH), this personal narrative examines how trust emerges not as a matter of belief or
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