Patient Advocates: Expanding the Landscape of Patient and Family Support

Through the voices of patient advocate contributors, this white paper explores the important role that patient advocates, both organization-based and independent, play in supporting patients and caregivers. We hope to educate patients and family caregivers about the function and services of patient advocates so they will be better enabled to call on their services when needed. Inspired by the volunteer leaders of The Beryl Institute’s Patient Advocacy Community, Patient Advocates: Expanding the Landscape of Patient and Family Support, surfaced in recognition of the need to better inform the healthcare community about the role patient advocates play in impacting experience. The paper also informs healthcare team members of the purpose, challenges and opportunities of the patient advocate role to facilitate a better understanding of how they might partner to improve experience for patients and families.