Patient Family & Community Engagement | Patient and Care Partners

Is this really happening? Family-centered care during COVID-19: People before policy

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Patient Family & Community Engagement | Quality & Clinical Excellence

Transforming Lives: A Journey of Compassion and Advocacy

On the Road with the Cystic Fibrosis Foundation – February 2024 by Stacy Palmer, CPXP I recently had the opportunity to travel to Bethesda, Maryland to meet with the Cystic Fibrosis Foundation, a non-profit organization dedicated to supporting individuals with cystic fibrosis (CF) by funding research and drug development, partnering with the CF community, advancing
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Patient Family & Community Engagement

Patient experiences through head and neck cancer: Information delivery combatting psychological distress

As part of a larger study investigating the utility of electronic decision support tools for patients with head and neck cancer (HNC), this article describes the patient experience of receiving cancer treatment in British Columbia, Canada. It aims to give voice to the patient experience and recommend a model of psychological adjustment for clinicians and
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Patient Family & Community Engagement

PX Chat on PFA/PFACS: New/Getting Started (April 19, 2024)

12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around new and getting started with PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges,
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