Effectively leveraging patient comments for strategic improvement
Published July 24, 2023
“The surveys that are used to benchmark health system performances fail to provide a complete view of what patients experience when they seek care.” Mary Kay O’Connor, Founder & CEO of PatientsVoices shares the value of utilizing patient comments to obtain a clear view of what really matters to patients.
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Patient Family & Community Engagement
“Psychosocial Dimensions of Living with Hep B: Notes from the Field The Lived Experience of a Mother Raising a Daughter with Hepatitis B”
Published August 8, 2025
What follows is based on the interweaving of three points of view each of which contributes to an understanding of the experience of living with Hepatitis B: (i) as the mother of a daughter who was diagnosed with HBV at 5 months and who still, at age 22, carries traces of the surface antigen in
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Patient Family & Community Engagement
Communicating Effectively when Engaging People with Lived Experience in Mental Health and Substance use Health Research: A Qualitative Descriptive Study
Published November 12, 2025
Background. People with lived experience of mental health and/or substance use challenges and families (PWLE/F) are increasingly engaged in research, providing positive impacts. However, effective engagement can be challenging, including ensuring effective communication. This qualitative study sought to understand the communication preferences of PWLE/F who are engaged in mental health and substance use health research.
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Patient Family & Community Engagement | Staff & Provider Engagement
The Cost of Silence: Addressing Disenfranchised Grief in Healthcare
Published June 23, 2026
This webinar shines a light on disenfranchised grief, the often-unrecognized loss experienced by both patients and healthcare professionals. Through real-world stories and frontline insights, presenters will explore how acknowledging unseen grief can transform care experiences and strengthen human connection. Participants will learn how empathetic, developmentally appropriate care supports patients and families while also addressing the
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