Research Imitates Life: Researching Within Your Lived Experience
Published August 8, 2024
This personal narrative article seeks to bring awareness to and provide an overview of the various aspects that come with being a lived experience researcher including the host of benefits and challenges that come with conducting research within one’s own area of lived experience.
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Patient Family & Community Engagement
Communicating Effectively when Engaging People with Lived Experience in Mental Health and Substance use Health Research: A Qualitative Descriptive Study
Published November 12, 2025
Background. People with lived experience of mental health and/or substance use challenges and families (PWLE/F) are increasingly engaged in research, providing positive impacts. However, effective engagement can be challenging, including ensuring effective communication. This qualitative study sought to understand the communication preferences of PWLE/F who are engaged in mental health and substance use health research.
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Environment & Hospitality | Patient Family & Community Engagement
Transforming the Inpatient Hold Experience Through Partnership
Published April 7, 2026
Discover how collaboration and innovation improved the experience of patients holding in the Emergency Department at Tampa General Hospital. Through PFAC partnership, guest services rounding, volunteer engagement, and technology enhancements, this initiative elevated comfort, communication, and care coordination. Attendees will gain replicable tools to improve experiences in nontraditional care settings. Speakers -Amy Matthews, Manager of
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Patient Family & Community Engagement
Beyond a Seat at the Table: Building the Infrastructure for True Patient and Family Partnership
Published February 25, 2026

Darcel Jackson, Manager, Patient and Family Centered Care Paige Warner, PFA Engagement Specialist Children’s National Hospital For years, patient and family engagement in healthcare has been framed as offering “a seat at the table.” While well-intended, that language often limits partnership to presence rather than influence. Our experience taught us that families don’t need a
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